And Darla said celebrities such as Lady Gaga can be an important factor to help raise awareness of the debilitating disorder.
Darla Fowler Tarpey, 53, was diagnosed with fibromyalgia 13 years ago.
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Her severe symptoms such as chronic pain and muscle spasms have forced her to retire early.
This picture was taken on a day where her symptoms were flaring up and she was in a lot of pain Lady Gaga is releasing a new documentary on September 21st titled Gaga: Five Foot Two about her own struggles with fibromyalgia.
Fibromyalgia is a multiskeletal disorder that affects five million people in the United States.
The mother-of-five from Massachusetts had to leave her job because her symptoms, such as pain, migraines and muscle spasms, were so severe that it impacted her ability to work.
Her symptoms have increased in the last 13 years where she now only experienced two to three symptom free days per month.